Privacy Policy

 »  Who we are
 »  Your rights
 »  What personal data do we collect?
 »  What Special Category data do we collect?
 »  How we make sure it is legal to process data
 »  Profiling
 »  Disclosure of Personal Data to other bodies
 »  How long do we keep your personal information for?
 »  Changes To This Privacy Policy

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Privacy Policy


This privacy policy explains how and why we use your personal information. This means you stay informed and allows us to use your data fairly and lawfully.

We will update this privacy policy page to show you all the things we do with your personal data.

This privacy policy applies if you are a volunteer of Parkinson's Disease Society Isle of Man, or if you use any of our services, visit our website and email, call or write to us.


Who We Are


Whenever you see the words "we", "us", "our", "the charity" or "Parkinson's Disease IOM", it refers to the Parkinson's Disease Society of the Isle of Man and its subsidiary.

Parkinson's Disease Society Isle of Man is a registered charity in the Isle of Man (No. 1157).

If you have any questions in relation to this privacy policy or how we use your personal data they should be sent to:

  »  Email: [email protected]

  »  Written Enquiries:Mrs Sarah Nicholson, Ballanoa, Ballamanaugh Close, Sulby, IM7 2HB


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Your Rights


Here is a list of the rights that all individuals have under the General Data Protection Regulations (GDPR). They do not apply in all circumstances. If you wish to use any of them, we will help you as much as possible.

You have a right to:

  »   access your information. This is called a Subject Access Request. Whether you any requesting information about yourself or on behalf of someone else, find out more information here.
  »   correct any information that we hold about you
  »   erase any of your information that we no longer have a right to hold about you
  »   ask us to stop us doing anything with your data unless we must by law or a contract
  »   stop any automated decision making. This is where a computer makes a decision about you. It should be noted that we do not do this.

To exercise any of these rights please contact us at:

  »  Email:  [email protected]
  »  Written Requests  Sarah Nicholson, Ballanoa, Ballamanaugh Close, Sulby, IM7 2HB

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What Personal Data Do We Collect?


Personal data you give us may include name, title, address, date of birth, age, gender, email address, telephone number, personal description, photographs and CCTV images. We'll only collect the personal data that we need.

We process personal information to enable us to:

  »   provide a voluntary service for the benefit of the national public as specified in our constitution
  »   administer membership records
  »   fundraise and promote the interests of the charity
  »   maintain our own accounts and records

Our processing also includes the use of CCTV systems for the prevention of crime.

You can give us your personal data by phone, email or by joining us as a volunteer or member as a patient, carer or family.

Special categories of personal data includes health information, race, religious beliefs, genetic and biometric data and political opinions.

Sometimes we will ask to collect special categories of personal data such as living with the condition yourself or a relative with the condition. You do not have to provide this information if you do not wish to do so.

We hold this information on our database so that we can tailor our communications to you; including information and support services and fundraising materials. We only collect this information with your explicit consent.

Supporters

For supporters making a financial donation, we record information that enables us to process your donation; such as name, contact details and financial details. We collect this with your consent.

If you are donating or participating in an event through a third part website, such as JustGiving, that website's privacy policy will apply. We receive your details only if you consent for these to be passed on to us and we use the data in line with your consent.

Where you attend an event or participate in an activity that we are running directly, we will collect; with your consent; a wide range of data; from your name and contact details to dietary preference ( where the event is catered for ) and in some cases health conditions or religious beliefs.

Where you are leaving us a legacy, we will capture; with your consent; information about your request. Sometimes we are legally obligated to share this information with other beneficiaries.

Members

We collect name and contact details plus date of birth to comply with our constitution of volunteers being a certain age. Your data is shared internally and with local groups to ensure that you can attend meetings and are supported.

We hold this information on our database so that we can tailor our communications to you; including information amd support services and fundraising materials. We only collect this information with your explicit consent.

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What Special Category Data Do We Collect?


Special Categories of personal data includes health information, race, religious beliefs, genetic and biometric data and political opinions.

Sometimes we will ask to collect special categories of personal data; such as whether you are living with the condition yourself, or perhaps you have a relative with the condition. You do not have the provide this information if you do not wish to do so.

We hold this information on our database so that we can tailor our communications to you. This includes information and support services and fundraising materials. We only collect this information with your explicit consent.

Service Users

When you get in contact with us, with your consent, only the data that you are happy to give us, in order to provide advice, guidance, or to receive feedback and comments. We do record all calls for training purposes. Some of this information will be health information, which is classed under Special Category Data.

If you would like us to provide any services to you, we will ask for some information about your circumstances to help us to support you. We will only collect this with your consent. You should only provide information that you would like us to have. You will be given more information at this point once we collect the information.

Case Studies

Some people have provided us with information about themselves in order to be used as case studies or on our literature or advertisements. In such instances, we obtain your consent to use these. Once these have been used, especially digitally, it is nearly impossible for these to be recalled as they will be downloaded by any anonymous users.

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How We Make Sure It Is Legal To Process Data


We reply on the following legal bases to use your personal data.

Where It Is Needed To Fulfill Our Contractual Obligations

The data processed to meet contractual responsibilities includes&;44; but is not limited to, data relating to employment records; payroll, bank account, postal address, sick pay, leave, maternity/paternity pay, pension and emergency contacts.

Where It Is In Our Legitimate Interests To Do So

  1 .   To continue processing personal data on an individual who has exercised their right to erasure/to be forgotten.
We keep basic data to identify that individual and retain in solely for suppression purposes to prevent further unwanted processing.

  2 .   To follow guidance and recommended best practice of Government and Regulatory Bodies

  3 .   For management and audit of our charity operations including accounting.

  4 .   To carry out monitoring and to keep records of our communications with you and our volunteers.

  5 .   For some of our profiling to determine the effectiveness of promotional campaigns and advertising

With Your Consent or Explicit Consent



  1 .   For some communications including those by email and SMS

  2 .   For some of our profiling and other automated decision making

  3 .   For some of our processing of special categories of personal data such as your health

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Profiling


At Parkinson's Disease Society Isle of Man, we aim to make sure that the information we send out to you in relevant and timely. We also wish to use our resources effectively, something supporters tell us is an important factor too. We use profiling techniques because they help us to make appropriate fundraising requests to supporters and importantly, to enable us to raise more funds sooner, and more cost-effectively, than we otherwise would.

A profile is primarily based on information that you have given through previous interactions with us. This may include broad information relating to you, such as geographic and socio-economic data (i.e. postcode), in order to have a better understaning of your potential interests and preferences.

This helps us to only contact you with the most relevant information. If you have made a gift to us, we would bear in mind its value and your gift patterns to help us be as relevant to you as we can. For example, if you make a donation towards helping set up exercise classes for Parkinson's Patients, we will prioritise sending you further information relating to our work in this area.

We compare the original purpoes for which the information was collected and use is against the purpose for which we intend to use it to determine whether the purposes are compatible. In deciding whether the two are compatible, we consider factors such as:

  »   the individual's reasonable expectations
  »   the potential effect of them of the processing
  »   what they have been told

For activities such as segmenting databases by reference to postcodes or other information we already have, this represents a relatively low level of intrusion into privacy and in these cases, the legitimate interest condition may be a valid basis for processing.

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Disclosure


We only send data to other organisations for them to make decisions about how to use it if we have a legal duty to do so.

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How Long Do We Keep Your Personal Information For?


Unless we exaplin otherwise to you, we will hold your personal information based on the following criteria:

  »   for as long as we provide service to you
  »   retention periods in line with legal and regulatory requirements or guidance

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Changes To This Privacy Policy


We will amend this Privacy Policy from time to time to ensure it remains up to date and reflects how and why we use your personal information and new legal requirements. If you have any questions, please Contact Us and we will try our very best to help you with your query.

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